Develop and execute a diversified fundraising program for an ultra-rare disease, securing support from individuals, corporations, foundations, government bodies, and digital channels. Lead grant research and proposal writing, digital and peer-to-peer campaigns, donor stewardship, sponsorship packages, and performance reporting to support research, family resources, and community building.
We are seeking an experienced Fundraising Specialist to develop and execute a diversified fundraising program dedicated to improving the lives of individuals and families affected by Barth syndrome, an ultra-rare disease affecting approximately 350 known individuals globally.
We aim to raise funds to support scientific research, advance treatments and a cure, provide resources to affected families, and strengthen the global Barth syndrome community.
The role combines strategic planning with hands-on execution across individual, corporate, institutional, government, and digital fundraising channels.
Responsibilities- Demonstrated fundraising experience within nonprofits, rare diseases, healthcare, medical research, patient advocacy, or other mission-driven organizations.
- Proven success securing funding from individuals, major donors, corporations, foundations, grantmakers, or government bodies.
- Experience managing crowdfunding, peer-to-peer, or digital fundraising campaigns through GoFundMe or similar platforms.
- Strong skills in grant research, proposal writing, donor communications, relationship management, and presentations.
- Ability to translate complex medical or scientific information into clear, credible, and compelling donor messaging.
- Resourceful and entrepreneurial approach to building support for a specialized cause with a small global patient population.
Requirements
- Develop and execute a diversified fundraising strategy across individual giving, major gifts, corporate partnerships, grants, sponsorships, and crowdfunding.
- Identify, cultivate, and engage prospective donors, foundations, corporations, government funding bodies, and strategic partners.
- Create fundraising narratives, cases for support, proposals, presentations, sponsorship packages, and donor communications.
- Plan and manage digital fundraising campaigns through GoFundMe or similar fundraising platforms, email, social media, and other online channels.
- Build donor stewardship programs that strengthen relationships, encourage recurring giving, and improve retention.
- Establish fundraising targets, timelines, budgets, reporting processes, and performance metrics.
Similar Jobs
Blockchain • Fintech • Payments • Consulting • Cryptocurrency • Cybersecurity • Quantum Computing
Associate Consultants advise major clients on strategic, marketing, analytical, and transformational business challenges. Depending on track, responsibilities include running data-backed experiments, developing marketing strategies, analyzing customer and transactional data, building models and visualizations, and guiding strategic or operational improvements. Consultants collaborate in small teams, manage client deliverables, communicate recommendations, and support multiple engagements across industries.
Top Skills:
Business Intelligence PlatformsExcelPythonSASSQLTableauTest & Learn
Blockchain • Fintech • Payments • Consulting • Cryptocurrency • Cybersecurity • Quantum Computing
Associate Consultant Interns collaborate on client engagements, analyze business and transactional data, develop strategic recommendations, support marketing and business experiments, and help implement solutions. Depending on track, responsibilities include SQL-based experimentation, performance analytics, data visualization, marketing campaign strategy, and strategy and transformation consulting. Interns build client relationships, present insights, contribute to deliverables, and receive mentorship while gaining exposure to business development, account management, and product management.
Top Skills:
Business Intelligence PlatformsExcelPythonSASSQLTableauTest & Learn
.jpeg)
Artificial Intelligence • Hardware • Information Technology • Machine Learning
Provides technical leadership for semiconductor assembly and test supplier quality. Leads supplier assessments, quality improvement projects, risk mitigation, complex investigations, root-cause analysis, corrective actions, process qualifications, technology transfers, and new product introductions. Establishes quality standards, governance, roadmaps, and advanced monitoring systems while partnering with engineering, manufacturing, procurement, reliability, and global suppliers. Applies statistical, reliability, data-driven, and AI-enabled methods to prevent defects and improve supplier performance.
Top Skills:
8DAgentic AiApqpCapaElectrical CharacterizationFailure AnalysisFmeaGenerative AiIatf 16949Iso 9001MsaPpapProcess ControlsReliability EngineeringSemiconductor ManufacturingSpcStatistical AnalysisWafer FabricationWafer Sort/Probe
What you need to know about the Delhi Tech Scene
Delhi, India's capital city, is a place where tradition and progress co-exist. While Old Delhi is known for its rich history and bustling markets, New Delhi is defined by its modern architecture. It's clear the region places a strong emphasis on preserving its cultural heritage while embracing technological advancements, particularly in artificial intelligence, which plays a central role in shaping the city's tech landscape, fueled by investments in research and development.
